Being a parent and receiving a cancer diagnosis at any age is hard. It doesn’t matter how old you are as the parent. It doesn’t matter how old you are as the child. I’ve been on both sides of this particular “cancer fence.” I’ve been the “child.” I’ve been the parent. Being on either side is hard.
Even though I was of a “mature age” when my mother received her cancer diagnosis eight years ago, it was still really tough for me as the daughter to watch her go through diagnosis and treatment and I’m sure it was equally as hard for her to observe me watching her go through it. Even though her children were adults, she still wanted to protect us.
When my diagnosis came almost two years ago, the “tables were turned” and I quickly understood what it was like to be the parent.
I was lucky in some respects because my children were not young children. Mine were young adults already, the youngest being eighteen at the time of my diagnosis. However, they had just witnessed first-hand their grandmother’s illness and death from metastatic breast cancer. They already knew and understood way too much. Their knowledge was and still is a “concern” of mine. I often worry they know too much because in fact, they do.
When you receive a cancer diagnosis while raising young children, the challenges are much different and I dare say probably more difficult, at least in some ways.
Having said that, there is no “better time” to get cancer. A “better time” doesn’t exist. Nor is there a “better” time to be the child of a parent diagnosed with cancer.
Cancer at any age or from any vantage point stinks.
When a parent with young children receives a cancer diagnosis, there may be a lot of uncertainty as to how much to tell them, or if they’re really young, if they should be told at all. Of course, this is a very personal decision. There is no right answer.
As an educator and a parent, I believe in being pretty truthful with age-appropriate information when explaining to kids about cancer. If children are of an age when they can understand a simple but honest explanation, I believe they can and should be told at least some of the truth.
“I believe in being pretty truthful with age-appropriate information when explaining to kids about cancer.”
Kids are really good at figuring out when something is seriously wrong anyway. They may hesitate to talk about their worries or be afraid and unsure of what to ask. They may keep such feelings, fears and questions to themselves, which may or may not lead to those feelings “coming out” in unexpected or inappropriate behaviors at some point.
As I’ve said before, not talking about something does not equal not thinking about it.
When feelings and fears are bottled up too long, they tend to come out eventually in some form anyway.
Also, kids are really good at imagining things on their own if they don’t receive an explanation. Sometimes they really do imagine the worst when they don’t need to.
“Not talking about something does not equal not thinking about it.”
Don’t we all?
I believe giving kids enough information, but not necessarily too much, can help alleviate such tendencies.
Here are some tips for talking to your child/children about a cancer diagnosis. Obviously, I am not a professional counselor. These are only my opinions.
- Decide who is the best person to tell the child/children.This might be the parent with the cancer diagnosis, the other parent or another family member (or close friend) entirely. I left “my telling” up to hubby. I just couldn’t bring myself to do it so soon after my mother’s illness and death.
- Although there is no “good time” to break the news, try to pick an appropriate time to have the initial cancer discussion when you can devote the time and extra mental energy it will undoubtedly require.
- Start with a simple explanation and then see what questions or concerns come up.
- Take the lead from each child. Offer reassurance as honestly as possible and always give each child an opportunity to state their feelings and ask questions. They might need to process the information for a while, so be sure to “check back in” frequently.
- You don’t need to tell every cancer detail, but don’t feel you must hold everything back either. Find the right balance for your family.
- Remember each child, even in the same family, might need more or less information and that’s fine. It doesn’t always boil down to age. Some younger children might want and handle more information better than older ones.
- Refrain from over-protecting your children. Kids can handle a whole lot more than we think they can. They don’t necessarily need protection all the time from the bad things in life and trying to protect them may, in fact, be more harmful in the long run.
- There are resources available to help. Use them if you need guidance or suggestions.
- Asking for help can be hard and sometimes asking for help after a cancer diagnosis can be even harder for some reason. Don’t be afraid to seek professional help if needed.
- Tell yourself as many times as necessary that is’t OK for your children to see you vulnerable. This one’s harder than it sounds.
- Don’t underestimate your children’s ability to cope, with your guidance of course.
- Do the best you can. Remember parenting before cancer is hard at times. Parenting during cancer treatment is hard at times. Parenting when cancer treatment ends will be hard at times too.
Being honest with children may help bring your family closer as everyone rallies together to help. Even young children are capable of exhibiting tremendous understanding, empathy and compassion. Sometimes we just need to allow them the chance to do so.
“Kids can handle a whole lot more than we think they can.”
Each cancer diagnosis is unique. Each family is unique, as is each child. Any family dealing with a cancer diagnosis must decide what’s uniquely right for them.
Is honesty always the best policy?
I think it is.
Have you had to tell children about a cancer diagnosis and if so, how did you go about it?
How did your children react to your diagnosis?
What has been one of your challenges parenting with cancer?
Have you been the “child” of a parent diagnosed with cancer?
After her recent breast cancer diagnosis, Nancy Stordahl started a blog at www.nancyspoint.com where she writes candidly about her own breast cancer experience, reconstruction, BRCA2 status, grief/loss, pets and other topics. She also advocates for change in today’s current breast cancer culture. Nancy has had articles accepted for publication in Grief Digest, Animal Wellness and Coping with Cancer. Work continues on her upcoming memoir, “Cancer in the Family, Is It My Turn Already?” She resides in Wisconsin with her husband, two dogs and one cat. She has a daughter and two sons.
Reprinted with permission from Nancy Stordahl.
My eldest read about it on my blog (accidentally left it open to the ‘announcement’). It was only a day after the dx and I hadn’t planned to say anything til my husband got home from Iraq (he was deployed when I got my dx). We just told our 8 year old I was having surgery and told her to ask more questions if she had any (she didn’t for a long time). The 2 year old saw me in every possible pre and post-surgical light and understood the surgery business but we didn’t bother explaining too much about why.
Perhaps the biggest help was simply keeping things normal. We did not attend any family cancer dinners (recommended by the hospital) or force the kids to join any support groups. Quite honestly, keeping it normal was best for all of us. I am back to my old normal and that has made it so much easier for me. We have gone on with our lives and I can’t say that the kids really ever think about it that much, if at all…which is a very good thing.
what if my daughter, who is 11 years old, asks if mom is going to die. How should I respond to that. Thanks in advance for the advice.
Casey,
That depends on your situation. If you are in end-of-life now, you should consult a counselor on how to tell your daughter.
If not, it’s best to say that while people do die of cancer, you are undergoing treatments to thwart or slow that process. If you have good odds, share them. If you have a curable cancer, say so.
If you have an indolent cancer, explain that people can live with cancer for years, even decades, and that your doctor is working to keep you healthy. If you are scared, admit it; she will sense your fear and dismiss your words as sugar-coating. But concentrate on the hopeful side of your particular cancer and stage.
Finally, don’t give her something to do. Don’t say, “Pray for me” or “You can help by cleaning the kitchen.” Because if something goes wrong, she may feel like it was her fault. Instead, tell her you love her, and find something you can do together that feels normal.
Best to you.
Jen Singer
We have just had the diagnosis that my husband has got pre lukemia and has to go through chemo and bone marrow transplant and will be in hospital for 4 weeks he has been having treatment for red cell aplasia before hand but now need to tell the children 8 and 4 that dad won’t be here for a month my son has mild learning difficulties and loves his routeen and dad putting him to bed every night. Think my little girl will struggle as I won’t be around as will have to split my time between hospital and home and just don’t know how I’m going to work it all to keep everyone happy and meet needs of my hubby and children all advice welcome and thanks in advance Jo x
Joanne,
I am sorry your family is going through this. For now, you’ll need a new routine, which as you know, kids thrive on. Have your son come up with a bedtime ritual for while Dad’s away, whether it’s “guest appearances” by family members and friends, or new books, or putting stickers on a calendar marking Dad’s return.
As for keeping everyone happy, cut yourself some slack. Their happiness is not your responsibility, and this is a tough time for everyone involved. Enlist as much help as you can get, and remember your own needs in all of this. Don’t tie yourself down to a schedule that will drain you so much that you wind up sick. Take care of you, so you can take care of everyone else.
Best of luck to you and your husband and kids.
Joanne:
Each state has disability services. When it rains, it most certainly pours, this I DO VERY WELL KNOW, but instead of dwelling on it as I have done lately, I want you to reach out to others in the disability world. That way, your children will have resources to deal with their pain and you will get a much needed break and resources so that you can also get help. I embrace all of you in the post, especially the young girls who have fathers. Know that you will always, always, always have his love. I know how this feels, this loss and the heaviness of an upcoming loss, and what my daughter must go through. I am with all of you in, always.
We are going through a really bad time. I just graduated from nursing school and have not gotten a job yet. My husband has been a stay at home dad the whole time I was in school and the kids are still adjusting to me being home more. Now my husband has cancer in his kidney and pancreas. We just found out so we don’t know yet if its one cancer that has spread or two different cancers. Our son is 3 and has learning disabilities and has NEVER spent a single day away from daddy. Our daughter is 7, will be 8 in three weeks. She is very intelligent and way beyond her years. BUT she also has child onset bipolar disorder. We are really concerned about what this will do to her emotionally. I know this is a lot and complicated but any advice? Thanks in advance.
Hi, my name is Jessica Craft. On January 13th of 2013, my 40 year old father was diagnosed with stage 4 colon and liver cancer, and its still sooooooo hard to cope with it.. I’m 17 years old. I have a little sister whose 13, and my mom isn’t soo easy to talk too about this. I was wondering if someone could help find a way to cope with this.. Please..!!!!!